Hi all, new here. I have 3 kids 15 yr old daughter has a learning disability which she handles well and I have 13 yr old twins (boy and girl) that both have Aspergers Syndrome and ADD. It would be nice to talk to other moms and dads that can understand what it is like

Replying to the post below.
WOW - I went and read up on this CAPD and am going to talk to his pediatrician this coming Monday. My son has many issues in learning...and he fits this to a "T". I am thankful I read your post. Michele in Minnesota

Tue 06/12/07 08:39 PM
Count me in. My son is probably ADD, possibly CAPD. No matter what he
is my sweet little terror!

Welcome MN_Miki

I could use help with this. I have two kids, both girls, who are 12 and 9. My older one can drive me nuts and within minutes make my heart swell with pride. She can be wonderful with helping with cleaning and she can tear a room apart. She has had several diagnoses over the years, beginning with age 3 1/2. My younger one is less severe. She gets distracted easily and has a hard time finishing class work. She is in a regular public school while her older sister is in a school for children with disabilities. My grandparents pay for the tuition, thank GOD!!! Their dad, who I divorced years ago and does not make any attempt to see them or help with support, is essentially "dead" to them. Both of us have problems. I have learned to cope with mine, yet I have a horrible time when I know we will al three be together for any length of time. If the weather is ok, I can let them go outside. If not, look out. We play games, watch movies, listen to stories on tape, make crafts and etc., yet each and everyday some battle must be fought. We are all in counseling and we get help from Impact Plus. I am still at my wits ends. I want to be a good mother and am willing to do what I can, yet I still go to bed exhausted and tense. I even considered bringing in the massage team that works with kids that have disabilities. I'm afraid to add another person to their lives. I know I just unloaded, but I really needed to get some things off my chest. Any other ideas? Is there anyone close to Louisville who would like to meet up for support?

soooo...we've been doing sensory integration therapy with jordan, and i believe it helps when we stick to the plan. lots of weight lifting and exercise...hard work to keep her awake...

still haven't made it into the specialty clinic.

we received her new hearing aids, and they are flat-out awesome. scares me to death to have seven grand worth of equipment on her ears...there's no feedback, no squeals, and they work wonderfully.

the school audiologist is going to provide an FM system for her school so that we don't have to transport ours back and forth every day...the teacher's voice will be directly transmitted into jordan's ears.

raegan goes to genetics on the 31st...anyone have any idea of what to expect?

how is everyone? I see that spring and summer have meant no posts...thats a good thing, right?
Well, enjoy summer, maybe we can all meet back in the Fall...
hope everyone's children are having a blst with school being out...

You gals are all making me cry. Serious. I have a 7yr old son who is ADD/ ADHD & 40% Autistic. Like one of you said, i wouldnt trade my son for anything in the world. He's my terror on wheels. He has therapy twice aweek and takes Ritalin for the ADD/ ADHD. Its been a rough ride and its just sometimes overwhelming but i have managed to get through it one day at a time. I am glad there is somewhere i can go on here to chat with someone who understands. Am i the only guy on here with this situation? If any of you are in So Cal you can go to the East Los Angeles Regional center. Its a long waiting list and alot of paperwork but it is well worth it. Its funded by the state and costs nothing. Its 100% free. Keep up the info and venting. Its ok to vent. Dale

Wow, guess everyone has been away from this thread for a while. I hope everyone is doing well. LonelyPapi, welcome to this forum. I haven't posted on here in quite a while myself. I know things are hard. My niece has a 5 year old son with Autism. Hang in there. I have a daughter who was diagnosed as Mildly Retarded, but she is very smart. Her smile can brighten up the darkest days.

My kids are all grown up now, when my boys were small one was hyperactive the other was hyperactive and hyperconnetick, think I spelled that right, anyway the youngest used to take a hacksaw blade to my furniture. It was rough with them growing up. But we made it through. I just wanted to say you guys are so awsome for starting this thread and helping each other out. I didn't have that when mine were young. May God Bless and Keep each and everyone of you in your time of trials.

God bless you all I would love a support group for our children. I have one daughter who is compound ADHD. As everyone says a terror on wheels but such a gem. Also I have one son who is Bi-polar/OCD. This is a difficult mix for the kids. I would love to have other people to talk to that understand.

Keeping glasses on will be easier if you make sure they are properly fitted and comfortable. As fast as children grow and damage glasses this will be a quarterly effort. Look for signs that they are binding or out of focus and causeing headaches. Observe your child at play is he leaning or looking at things sideways. Do they show wymptoms of headache; blinking , wrinkleing their nose, pulling their hair, fatugued crying. Not every prescrition is right or made right; have them double checked Try to get ultra lite frames and lenses. Lyons Club International will help with the uncovered costs. On a child's reame grams of weight matter. Frame color and style can make a huge difference to even a young child. Especially if syblings or playmates are cruel. Sometimes a parent wearing glasses will help model for the very young child. Try pretty straps or sports bands so keeping them in position isn't a constant struggle. Depending if your child can do it making an art project out of stringing beads or laces to make a strap. Adding a pesonal sticker or initial sometimes makes them appealing. The other thing is giving praise and tiny rewards for wearing the glasses rather than nagging when they don't. Make wearing glasses silently mandatory; no glasses no attention, not food, no play. Be sesitive to remarks about how you feel about glasses; little pictures have big ears.

Hi my name is Missy, I have 3 children, my oldest is going to be 8 this month and has adhd, ocd, along with a behavior disorder. My middle child is 6 years old and she is bi-polar. Then I have a 4 year old son. The girls are a handful with my son seeking his attention my doing what ever the girls are doing which most the time is no good. lol. My in laws say that I am the problem with the kids and don't know how to care for a child so its everlasting fight with family time. Their dad is also bi-polar and the kids pretty much at just like him. I am still married to him but only cause I can't not leave him alone with the children by himself because he can not handle the stress of caring for them. We have had separate bedrooms for over a year now and I would like out but don't have any support from anyone to make it on my own with 3 children 2 of which needs special care. So I guess you can say I am separated in a way. Not sure how to put it really. I am unsure how the kids would react to the divorce or moving away from their dad which is one of the reasons I have yet to move out on my own. My oldest can not handle any type of change what so ever and I am having to go to school for a talk with her teacher daily since school started because of it going back from summer and it being a new teacher with a new set of rules to follow. The teacher at first did not seem understanding of what she needed to function without a melt down but soon found out she is going to have to give a little bit with her and allow her a little freedom on moving around and taking an extra break if only going to the bathroom to just get away from the other kids for a few minutes. Last year she was on honor role all year and we were really hoping for her to show her true colors right from day one but she had problems adjusting but is coming along wonderful as of today with no sticks and a good note from the teacher saying she was proud of her today. My middle daughter is so sweet and loving most the time you would never know anything was wrong. She can snap into crying fits in the drop of a hat though over the littlest things that most wouldn't think twice over. She behaves wonderfully in school but her attention is very short and can not complete her work so was held back in kindergarten and now that she is in first cause of her age still can not do the work that is required. We are having her tested to see if she needs an iep and all that but have to wait for the teacher to evolute her for 30 days first.So on that note we have at least 3 wks before we hear from the teacher how that went then have to set up the test.

Guess I really have introduced myself here as well as vented some as well. Thanks for listening and for any help that can be offered.

My neice has a S/N child.I must say they are very trying,And also a handfull.But what child isn't.At times she feels guilty.Like she has done somthing wrong.So to all you wonderfull parents out there with S/N children.These children are in fact a blessing.They love,smile.And live.
So please, when it seems so much to handle.Thank god for knowing you were intrusted with these wonderfull children.They are a blessing,And were blessed with you as there parents.
to all of you !!

Hello everyone!

I hope everyone is having a healthy & happy summer!

For all the new posters WELCOME!

--My son has been catching up by LEAPS and BOUNDS (literally!) If I didnt post it before...his hydrocephalys has cleared up on its own and he doesnt need shunts. He hasnt had an asthma attack in OVER 6 MONTHS!!! His glasses had to bump up this year but atleast he wants to wear them now!

But he has caught up so well! He is quite the busy boy and love helping! Every sunny afternoon we have been at the lake, He SWIMMING!

He is still followed by speech, physical therapists, occupational therapists, and social/ behaviorists...but doesnt need to go to the neurologist anymore and is followed by his regular peditrician (close to home) he isnt followed by Mayo anymore. We also have a home nurse that still visits, but most of the visits these days are spent chatting & catching up.

All good news here!

I work with special needs kids (severely and physically disabled) in an elementary school and I just love it!

Im new to this site..
Nice idea to start this thread..
its huge!

My 4 yr old is autistic..
surely keeps me on my toes..
tons therapy, appts, ect ect
plus im a young breast cancer patient
and my hubby died..
when it rains, it pours..

we are all doing well tho..
my son picked up alot of speech this
summer..
still no sentences but he used his first
verb the other day..( was only saying nouns)
so that was awesome..

glad to see all this support
lotsa hugs..

I belong here as well. I have 11 year old twins that were born prematurely. One with Neurofibromatosis/CP/G-tube/Seizure Disorder/Globally Delayed (the list goes on)and the most precious laugh you have ever heard.....the other a typically developing pre-teen with raging hormones!

Something I deal with on occasion is grief. It's grief for her and the things she has to struggle with but also selfish grief for the things I struggle with (just being honest). I belong to lots of groups and have many friends in the same situation, but I will on occasion find myself in a rut that seems soooooooo hard to crawl out of. It doesn't help that their father left us and provides no emotional support whatsoever at this time. I'm a proud person and when I get down I tend to retreat rather than reach out.

How do you all deal with the emotional side of all this?

Hello to you...regarding emotional craziness, sometimes i just scream my head off into a pillow, sob my heart out, feel sorry for myself for a while..then i pick myself up off the fllor again and carry on.....as aingle parent we all have to "carry on" which sometimes creates a huge stress level, so when i really cannot cope i just let go some (not all the way tho!!), then i can regroup and face whats in store again...

Ok guys and gals...lets get busy...how is everyone doing these days?

Ah good..life in here!!
Things are ok here.....not looking forward to heading into the winter blahs, but will just have to keep us busy so we get through it with lots of fun. Thank you for your comment on the grief issue. Yes, ya do have to crawl up out sometimes. It's such a cyclic thing.
Hope everyone's kiddos are healthy and happy this fall!
~Heather