this is cool. i have a 7 month old with severe asthma and a 1 year old neice i help take care of who has epilepsy. in fact she is in icu on a ventilator now waiting on sis to call and tell me i am allowed to come down

Venting to follow...forgive me in advance.

Had parent teacher conference this morning. I walked out in tears. They got our permission to videotape my boy's bad behavior. 5 seconds into it, I was in tears. 5 minutes into it, I was out the door.

Neurologist this afternoon. Went well. Change up of meds. More blood work which is father is uncapable of taking him to. So, I get to take him on Friday afternoon. Good thing bribery works in these cases.

Feeling somewhat calmer. Going to a child psychiatrist next. His father is all about wanting a diagnosis. I just want my boy to be happy and well adjusted. Sigh.

Thanks for listening. Hugs, M

G'mornin
I haven't read this whole thread. I just read in the paper about a book on Autism So I thought I would post it.
sorry if it's already here.
It's by Jenny McCarthy "Louder than Words"
google it, maybe it can help some.

Hey everyone. I am wishing that everyone is well and that you all had a good weekend

Auburn if you can get pictures or video. Too often caregivers are just not believed. Keep a journal of the behavior. I know it will be hard but putting your grands somewhere like an activity or daycare where they can have outside observation may give you credibility.

Sometimes it is associated with certain triggers such a allergies, fatigue. FIrst thing I always recommend to parents is put the kid to bed earlier and clean up the diet.

If the first doctor refuses you enlist others. Don't necessarily let your records proceed you. Go out of your area for an independent input. I am not saying lie but don't let anyone simply sign off on another physicians' decision.

Last but not least she may be targeting you for long seated anger for not rescueing her before you were forced too. You don't know what she was told about you by your daughter or others. Children try to defend their parents as themselves. You realy have to clean up yours and anyone else around them's "rag on the Mom" rants. I don't blame you for being angry it just is hurting an already hurting family. My prayers are with you..

Michelle,
SOrry you were Sandbagged in your parent teacher conference. It is inapproriate for teachers, therapists, ect. to present you with such sensitive information in such a public setting where you were not allowed to have time to process it in private. it is one thing to live this behavior with a child it is and entirely different thing to see it on video tape (that may or may not be edited)or other diagnostic data that you do not understand. You need and advocate to balance the tables in these meetings. You do not have to go alone. I strongly recommend all meeting be scheduled with attendee lists and an agenda and and independent moderator. That is you and your childs right. You can not be expected to make good decisions in this environment. THere is help out there and myself or others will be glad to even the odds for these future encounters.

Hi everyone...been a very challenging week or two on my end.....sometimes i just wanna dig a hole and bury myself.. sigh!!

Auburn...my oldest is bipolar, and his behavior is reminiscent of your grandchild's...however, ODD (oppositional defiance disorder) behavioral disorder, conduct disorder, intermittent explosive disorder, and RAD (reactive attachment disorder) (a real possibility in your situation)also result in the types of problems you describe..and it is amplified with ADHD.I would suggest calmly presenting the caseworker or case manager with a written request for evaluations...in addition, if you ask the school (in writing) for an IEP (Individual Education Program)they are obliged, by law, to poerform testing/evaluations, whichj would help you determine where the problems may lie..good luck, my prayers are with you...


Michele...sorry about the school situation....it can be rough...i have been there, done that....even when the teachers etc are on your side it can still be a negative experience...but stick with it, get yourself as informed as posible, and use every tool available to you so that your son can get the support he needs at school to do well.....i suggest doing a search on 504 and IEPs....its interesting and will give you some ideas on accomodations to ask for that will help your son do well....prayers, hon!!

CrazyCowGirl...God bless you and your sweet little miracle...we will pary for both of you...keep us posted on developments if you can...

Lonelyredheadgirl...hows the baby niece? Hope things are going well for her...

Twi....keep smiling:) You have a good attitude, and that helps alot :)

Everyone else...have a wonderful week, lets all enjoy the special bonds we have with these miracle babies, no matter how old they are....
HUGS to all

Thanks for the kind words everyone.

We are muddling through. The latest meds are making D crazier than usual. I pulled him off of them last night. Hopefully his father did not put him back on them tonight.

Britgal-Please email me if you get a chance. I tried to email you but since I am not a man I could not.

Hugs to all. And if anyone needs me, find me.

M

I have 3 boys, each one of them has their own sweetness about them. my 14 year old has severe deep depression and adhd. he sees a counselor, phyciatrist, and has a youth services lady who comes to our house for meetings. she is there just for him. he is doin well on his meds and enjoys life again. we stil have our lil bumps but all in all he is doin great.

my middle son is 9 and was diagnosed with diabetes when he was 3. we had some routine tests done and when they came back his blood sugar was over 600 (really high). he has been on daily meds since then and is finally stable with the help of actos. he also has asthma and allergies.

my lil one is almost 8 and has adhd, asthma, psoriasis and the cutest thing u have ever seen, lol. he also sees a therapist and goes to counseling. he is not on meds at this time.

i am new here and so far this has been a wonderful place to meet friends. i was sent here by a friend. i am so glad i joined. everyone is so nice here.

Hi everyone

I have a 4 yr old son, he was born 5 wks premature, 3lb 4oz 15 3/4 inch long. My son is biracial, and I dont have alot of info on his father due to his father is no where to be found.

My son has asthma, which didn't get diagnosed until he was 18months old, after repeted upper respitory infections.He does well with his meds, hates the breathing tx, but he does them, he is also a sickle sell carrier..which just means he has the trait. Also goin thru O.T. weekly & P.T. 2x monthly since birth. he walks on his toes, he has braces for that, but it doesn't help much at all, once the shoes and braces come off, he's right back on his toes.. shoot.. he even gets on his toes with the braces on!

anyway, I just wanted to let y'all know, there is one more to the group

Just ran across this and it caught my eye. I have three kids that are 9, 8, and 6. Two of them are ADHD, one is on meds and one is not, There are days that my youngest makes me wonder why I am not bald.....Over the years, I have gone thru daycare providers cause they say he is too hard to handle. I have solved part of the problem and work out of my house.

Man I really hate this weather!!! My son is wheezin again, so its back to the breathin tx.. he HATES them. and the albuterol makes his so gittery.. he actually shakes after the tx for a good couple of hours... i think i'm gonna have to have them change that one.... and the weather is not helpin any!

Jackie I have a 14 year old son who is autistic I had the same problems day care would not take him and hard for baby sitters I too was able to find a job that allowed me to work from home.

Mommy sorry to hear that is happening with your son.

Hi gang. I also have an autistic child. Michael is 12, non-verbal and still not potty trained. I'd give my eyeteeth to get that boy out of pull-ups!! He also has a congenital heart defect (tricuspid atresia) and has had three open heart surgeries and a pacemaker implanted.

My soon-to-be-ex was a stay-at-home-dad (we reversed roles 2 years ago), and now that he's been kicked out, I've had to put Michael in public school. What a pain, but he is doing so much better this time around. I may be pumping some of y'all for IEP advice. That's the next step for us.

Cool to see this 'support' group for single parents with special kids. And I'm like y'all, I wouldn't trade Michael for a normal kid... EVER!!

Hey ya'll,
I admire all y'all that have battled several issues at the same time. Sometimes my boys are ehough for me, and I suspect that my daughter ( middle child) may also have a mild form of ADHD. She is the sweetest thing, but once she is mad, it can last for hours. I thougt I was safe b/c there were no symptons that the boys showed early, now I am not so sure.
I have solved the daycare thing by working out of my house. I also frequent their school at least twice a week. Sad thing is though, in my son's K class there are 25 students. 6 of them are ADHD. I make a point to going on his field trips because it is my job as his mother. but also because I know how hard he can be sometimes.

WOW!..Thanks for starting this topic..I am not a parent of a disabled(DIFFERENTLY-abled child as I like to say)..but as most of you know..I am DIFFERENTLY-abled and most times feel like I am the ONLY one out there who is..I know that sounds silly but I am the only one in my family that has SB and they like to make it known that "I'm healthy and you're not"..and these are the adults.Anyways I just wanna say to all the parents that you're all beautiful people for what you do with and for your kids.

So tonight, only have my oldest ( dad has the other 2, joint custody and all) and I love the almost silence. He is playing with my roommates three boys, all of whom are ADD/ADHD and bipolar. Sometimes the best way to describe it is a 6 ringed circus, without having the popcorn, LOL.
There are always those ppl that look at these kids and think we are crazy. IN truth thou, we have fixed the issues of daycare and those times when there is no one to help. We covered all the bases. I am thinking about looking an evening job, just so I can leave them all at home sometimes.

can i pull out my hair yet?

headed thursday to see an OT for jordan...hopefully they can get her some relief. not too sure what i think of sensory integration therapy, but i'll try almost anything once.

*sighs* i'm tired of putting myself in time-out.

I work with special needs children... it's great to see parents of special-needs children that are so caring and concerned about their kids!

I always get this "I really don't see how you do it, I myself would go nuts" and I always reply "I just love him"

sensory integration therapy at first it sucks to watch but it helps alot and then he got use to it