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| Topic: Does anyone have an autistic child? | |
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I have been reading an article in Neurology Now about X chromosomes mutations.
Medical problems from X chromosome mutations include -Seizure Disorders Frequent ear infections Mitral valve prolapse Starbismus or crossed eyes Presobypia eye focus issues Autism approx. half of children with an X chromosome mutation will develop autism Cognitive side affects delayed speech language motor skills Intellectual disability Impulsivity Poor eye contact vuneralbility to sensory overload aggressive behaviors difficulties socializing Many autism like symtoms would be socializations issues, communications, delayed speech and motor skills, aggressive behaviors, vunerlabilty to sensory overloads, and Impulsiveness (most of those listed under the cognitive side affects) I would suggest you talk to your doctor, have your child evaluated by a pschologist to get a diagnosis or a theory (you may wish to get the opinions of a few. I would start him in therapy with a therapist, get him on behavorial charts, and charts of expectations. Discuss if diagnosed treatments with a Psychiatrist and the therapists you choose to work with your child. I would, also suggest, occupational and speech therapy. |
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My son is showing some signs of autism. I really could use some insight to the disorder. So if any one on here has a child with autism of any severity I would really appreciate some advice on how to handle a child with it. How do I go about getting him tested? etc etc Thanks in advance Staci The most common cause of autism is vaccines that use a mercury based preservative. Also, get fluoride out of your water. Buy an RO system and use it. Our daughter is due in February and she has had the benefit of clean water, free of Sodium Fluoride. For your health and that of your children, clean water and informed consent about vaccines are of crucial importance. I was never here. That is absolutly a false myth. |
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Edited by
teadipper
on
Fri 12/09/11 01:42 PM
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There are so many good organizations with information and support for parents everywhere. My neighbor, Mary, places the high functioning in jobs. I had an Asperger's (sp) boyfriend that while he had certain things he did that were related was a very hard worker and income earner once I educated myself. He liked certain things like the dishes always clean and DVDs in order and I was always like "You do that baby" LOL. My friend's son with Asperger's is working on his PhD. My other friend has another form of Autism. He has a Master's in Political Science. Do not let people make you think this is a curse.
P.S. My ex who was the highest awarded worker at his job did not speak for three years as a child and they did not know it was the Asperger's related. I read a lot to understand why he thought and did certain things. The most important I learned was that he was super literal so if I said "if you do that again, I will kill you" he thought I meant that so I learned real quick to edit what I said like that. However he had other skills like he could memorize ANYTHING. If you showed him how to do something, he would remember forever. He also remembered any word he ever knew and I would have to with my high IQ get a dictionary at times and look up what he said. He had a GED. He could read a physics book and comprehend everything. He knew everything about US and world history. Anything he wanted to know about, he knew everything about. However if it was not important to him, like I like BBQ sauce with my chicken nuggets like every 2 year old in American he would not remember. |
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Thanks for sharing your experiences, teadipper. I am in the middle of discovering that my husband has Asberger's traits, and it has been quite difficult for me to make adjustments for his behaviours, mostly because the areas he has the most difficulty with is in the socializing and seeing things from others' p.o.v.
Are there any resources you would recommend for family/mates of people with Asperger's syndrome? Thanks a bunch! |
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Thanks for sharing your experiences, teadipper. I am in the middle of discovering that my husband has Asberger's traits, and it has been quite difficult for me to make adjustments for his behaviours, mostly because the areas he has the most difficulty with is in the socializing and seeing things from others' p.o.v. Are there any resources you would recommend for family/mates of people with Asperger's syndrome? Thanks a bunch! Ya know, I gave my books to my neighbor who works with people with Autism. There is this really one expensive one that is considered the gold standard. It's like by the guy who discovered it. SOOOOOOOOOOO NOT HELPFUL. I can't remember the name of the book that was most helpful to me. It was written by a woman writer whose husband has Asperger's and it's about their relationship. I found that really truly the most helpful. I wish I could remember the name of the very first book I read. It said the part which the most helpful and also that don't let them use the Asperger's as an excuse to be a jerk. You need to be understanding of the condition but at the same time as with any condition, it is not carte blanche (sp) to just go around being a social jerk. While you have to learn what makes him tick and understand that, he needs to actively know that his social skills are not all that great and work on them. It's very hard for them but with all conditions of any kind you must learn as the person with that condition how to get along in society. A big thing I learned too is that the middle of the face is more expressive horizontally that the rest. It is much bigger window to the emotions they are feeling, they may not move their forehead or mouth like someone else but they are very expressive right the the horizontal part of the face. They also do not express pain normally so if he says he hurts, he probably really really hurts. A huge thing is knowing that while they are wickedly good at remembering what interests THEM they are not always really clued in to what interests you. You need if something is really important to almost smack them over the head with it. For instance if something happens and you are really sad and they don't notice, it's not that they are ignoring you or cold hearted, they don't read faces like others. He may have no clue what you think and feel unless you state it until you get frustrated and tears pour down your face and then he will probably feel bad and blindsided because he has no idea. It's not that they are insensitive emotionally. They really do not pick up on normal cues. And you can't hint that you want something, you need to flat out say you want something. Whether it's a hug, sex, for him to bring home 2% milk from the store. you need to flat out say it. My mom would tease that Aspergers that way is just that is an extreme male brain. That's not really far, most of my guy friends pick up on stuff and some are even more sensitive than me. Really though, he needs to work on him while you are working on you. There is a book. I got these all on Amazon. Again sorry I do not have the title. It's meant for younger but extremely helpful on transitioning into college and work. Don't let him read too much about his diagnosis so much as skills he needs to learn. Since they are so literally, they hang on every word of a diagnosis and kind of take it like it 's a sentence for life or that because it says it that particular bad thing or trait will be in him and that is not necessarily the case. It varies greatly from individual to individual. Also writing things down helps. They may not hear what you are saying or see it your face, but if you express yourself in writing they very much can read something and that goes into their brain more than a look on their face. I highly recommend if he is feeling insecure that you write him a letter on the computer confirming the good things about him. All the good stuff about your marriage and relationship. Do not put the negatives in that letter as he may dwell. But it helps a lot. It gives them something tangible to refer back to. The guy I did that for carried a letter I wrote to him like that everywhere in his wallet and referred back to it. Also a code for everything is alright is good. We worked out that he would said "Rock solid?" And I would say back, "Marble, baby". That was kind of our version of "We cool?" "Yea" |
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Thanks for sharing your experiences, teadipper. I am in the middle of discovering that my husband has Asberger's traits, and it has been quite difficult for me to make adjustments for his behaviours, mostly because the areas he has the most difficulty with is in the socializing and seeing things from others' p.o.v. Are there any resources you would recommend for family/mates of people with Asperger's syndrome? Thanks a bunch! Ya know, I gave my books to my neighbor who works with people with Autism. There is this really one expensive one that is considered the gold standard. It's like by the guy who discovered it. SOOOOOOOOOOO NOT HELPFUL. I can't remember the name of the book that was most helpful to me. It was written by a woman writer whose husband has Asperger's and it's about their relationship. I found that really truly the most helpful. I wish I could remember the name of the very first book I read. It said the part which the most helpful and also that don't let them use the Asperger's as an excuse to be a jerk. You need to be understanding of the condition but at the same time as with any condition, it is not carte blanche (sp) to just go around being a social jerk. While you have to learn what makes him tick and understand that, he needs to actively know that his social skills are not all that great and work on them. It's very hard for them but with all conditions of any kind you must learn as the person with that condition how to get along in society. A big thing I learned too is that the middle of the face is more expressive horizontally that the rest. It is much bigger window to the emotions they are feeling, they may not move their forehead or mouth like someone else but they are very expressive right the the horizontal part of the face. They also do not express pain normally so if he says he hurts, he probably really really hurts. A huge thing is knowing that while they are wickedly good at remembering what interests THEM they are not always really clued in to what interests you. You need if something is really important to almost smack them over the head with it. For instance if something happens and you are really sad and they don't notice, it's not that they are ignoring you or cold hearted, they don't read faces like others. He may have no clue what you think and feel unless you state it until you get frustrated and tears pour down your face and then he will probably feel bad and blindsided because he has no idea. It's not that they are insensitive emotionally. They really do not pick up on normal cues. And you can't hint that you want something, you need to flat out say you want something. Whether it's a hug, sex, for him to bring home 2% milk from the store. you need to flat out say it. My mom would tease that Aspergers that way is just that is an extreme male brain. That's not really far, most of my guy friends pick up on stuff and some are even more sensitive than me. Really though, he needs to work on him while you are working on you. There is a book. I got these all on Amazon. Again sorry I do not have the title. It's meant for younger but extremely helpful on transitioning into college and work. Don't let him read too much about his diagnosis so much as skills he needs to learn. Since they are so literally, they hang on every word of a diagnosis and kind of take it like it 's a sentence for life or that because it says it that particular bad thing or trait will be in him and that is not necessarily the case. It varies greatly from individual to individual. Also writing things down helps. They may not hear what you are saying or see it your face, but if you express yourself in writing they very much can read something and that goes into their brain more than a look on their face. I highly recommend if he is feeling insecure that you write him a letter on the computer confirming the good things about him. All the good stuff about your marriage and relationship. Do not put the negatives in that letter as he may dwell. But it helps a lot. It gives them something tangible to refer back to. The guy I did that for carried a letter I wrote to him like that everywhere in his wallet and referred back to it. Also a code for everything is alright is good. We worked out that he would said "Rock solid?" And I would say back, "Marble, baby". That was kind of our version of "We cool?" "Yea" This is SOOOOOO helpful! Thank you very, very much. There is a lot in here that makes complete sense: writing things down and speaking very literally, especially. He certainly has trouble 'hearing' what I say - we're in the middle of BIG issues, right now, because of that (we're separated, right now). it's HARD WORK. More than a "normal" relationship, I think, because the vocabulary we are using doesn't mean the same thing to each of us. If I ask him," Would you like to go out for dinner?" because I would like to spend time with him, he takes it literally, and says,"No." because he doesn't want to be out with other people because he is tired and it wears him out. I think he has said 'no' because he doesn't want to go out with ME, not just that he doesn't want to go out. So, then I ask my girlfriends and we go out, instead. We have done that little dance for about 10 years (we've been together 20...) and I finally snapped,  because he and I don't do things TOGETHER anymore. Anyway, fortunately, he is willing to work on things, and not use it as an excuse, so we're trying to find our way through to coping ... I will do some searching on Amazon and see what I can find, too. Again, thank you for your insite 
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Stacy,
I work for a magazine in Harrisburg, PA called Capabilities - it's a derivitive of Central Penn Parent. if you go to http://www.pageturnpro.com/Central-Penn-Parent/26844-Capabilities-2011/index.html#/1 you can check out the latest... there is also a special needs section of the main website www.centralpennparent.com...and it has a lot of resources for autism. Best of luck. Carley |
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I will definitely check them both out. Thank you!
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I will definitely check them both out. Thank you! I tried to message you and this may be TMI for those not interested. And I talked other women with Asperger men and they had the same problem, they sometimes space out during sex and can't climax. And it's embarrassing and frustrating for them. The best thing to do is if you had a good time, let him know that and OFFER HIM A BIG 'OL RAIN CHECK FOR LATER WHEN HIS BRAIN IS BACK ENGAGED. |
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I will definitely check them both out. Thank you! I tried to message you and this may be TMI for those not interested. And I talked other women with Asperger men and they had the same problem, they sometimes space out during sex and can't climax. And it's embarrassing and frustrating for them. The best thing to do is if you had a good time, let him know that and OFFER HIM A BIG 'OL RAIN CHECK FOR LATER WHEN HIS BRAIN IS BACK ENGAGED. I changed my e-mail settings, so you should be able to message me directly, now.  Thanks for the info. I will file that away for future reference. 
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I will definitely check them both out. Thank you! I tried to message you and this may be TMI for those not interested. And I talked other women with Asperger men and they had the same problem, they sometimes space out during sex and can't climax. And it's embarrassing and frustrating for them. The best thing to do is if you had a good time, let him know that and OFFER HIM A BIG 'OL RAIN CHECK FOR LATER WHEN HIS BRAIN IS BACK ENGAGED. I changed my e-mail settings, so you should be able to message me directly, now. Thanks for the info. I will file that away for future reference. Hey my relationship and alllllllll that reading should not be for not. It's a freaking public service I do. A freaking public service. LOL. |
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Haha
Thanks for sharing the wealth! |
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Stacy, I work for a magazine in Harrisburg, PA called Capabilities - it's a derivitive of Central Penn Parent. if you go to http://www.pageturnpro.com/Central-Penn-Parent/26844-Capabilities-2011/index.html#/1 you can check out the latest... there is also a special needs section of the main website www.centralpennparent.com...and it has a lot of resources for autism. Best of luck. Carley Thanks Carley |
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hi! i have a 5yr old son who has autism, and my 12yr old son has aspergers.My daughter was diagnosed with adhd, but i don't agree with the diagnosis at all.It's quite easy to spot the children with autism once you are familiar with the characteristics.Higher functioning is much more difficult to diagnose because there are so many other diagnosis' that present similarly.Alot of these children also have other disabilities that can make it hard to pinpoint the exact disabilities they have.I find the kids very easy to handle, it's everyone else that I have issues with (mainly ignorance and service providers).My ex-husband and his wife have also caused huge problems for us.They are internet queens and believe every "autism cure" that they find on it.Many of those treatments are so harmful to little people.I find having kids with special needs does make it difficult to meet people and date.Mostly because I don't have much free time and because alot of men seem to run away at the thought of dealing with my children.I wouldn't change them at all though.They are awesome kids and they are extremely happy kids.Good luck and if anyone has any questions please feel free to ask!
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oh and to the person that keeps posting about vaccines causing autism, please do your research!There is proof that true autism is genetic.The one study that claimed to verify vaccinations as the cause of autism, was corrupt with falsefied information.This was proven in court.This fact is the number one reason why I believe a certain actress who wrote books about certain miracle cures, and vaccines being the trigger for autism, should be put in jail. Her books are based on this false study and she has spread so much misinformation it's terrifying. She is just another scam artist trying to make a quick profit off of desperate parents. Don't believe everything you read or hear off the net or in the media.Read the actual science journals, talk to the universities and hospitals who are actually doing the research.Talk to the specialists in your area who you know you can trust (that is they can't make any money off of you, they genuinely want to help).Oh and to back up my claims about the vaccine issue, both of my sons were diagnosed BEFORE they had any vaccinations!
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Hope you all keep shareing even thought he original OP is deactivated.
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hi! i have a 5yr old son who has autism, and my 12yr old son has aspergers.My daughter was diagnosed with adhd, but i don't agree with the diagnosis at all.It's quite easy to spot the children with autism once you are familiar with the characteristics.Higher functioning is much more difficult to diagnose because there are so many other diagnosis' that present similarly.Alot of these children also have other disabilities that can make it hard to pinpoint the exact disabilities they have.I find the kids very easy to handle, it's everyone else that I have issues with (mainly ignorance and service providers).My ex-husband and his wife have also caused huge problems for us.They are internet queens and believe every "autism cure" that they find on it.Many of those treatments are so harmful to little people.I find having kids with special needs does make it difficult to meet people and date.Mostly because I don't have much free time and because alot of men seem to run away at the thought of dealing with my children.I wouldn't change them at all though.They are awesome kids and they are extremely happy kids.Good luck and if anyone has any questions please feel free to ask! Your children are very lucky to have a mom like you.  Being loved and accepted for who you are is the best gift you can give them. Are you connected with any support groups in your area? |
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hi! i have a 5yr old son who has autism, and my 12yr old son has aspergers.My daughter was diagnosed with adhd, but i don't agree with the diagnosis at all.It's quite easy to spot the children with autism once you are familiar with the characteristics.Higher functioning is much more difficult to diagnose because there are so many other diagnosis' that present similarly.Alot of these children also have other disabilities that can make it hard to pinpoint the exact disabilities they have.I find the kids very easy to handle, it's everyone else that I have issues with (mainly ignorance and service providers).My ex-husband and his wife have also caused huge problems for us.They are internet queens and believe every "autism cure" that they find on it.Many of those treatments are so harmful to little people.I find having kids with special needs does make it difficult to meet people and date.Mostly because I don't have much free time and because alot of men seem to run away at the thought of dealing with my children.I wouldn't change them at all though.They are awesome kids and they are extremely happy kids.Good luck and if anyone has any questions please feel free to ask! That's awesome and you are correct about diagnosing higher functioning.....erg it took me 10 years for my son's diagnosis.... |
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I have a teenage son, age 18 now, and I am raising him alone.
Far Northern regional is a good place to start. ARC of Butte Co. is another. Speech Tharapy is necessary for the child. Best thing you can do is educate yourself about all froms of autism. An offical diagnosis will be needed for getting as many services possible for him. Prayer will also help. He will need social skills. IEP in school will be a must! hope this will help. Big word here will be consistancy. |
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Edited by
Totage
on
Fri 02/10/12 01:12 PM
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My son is showing some signs of autism. I really could use some insight to the disorder. So if any one on here has a child with autism of any severity I would really appreciate some advice on how to handle a child with it. How do I go about getting him tested? etc etc Thanks in advance Staci I take care of my four year old nephew. He was diagnosed very early because he had heart surgery at birth. Its difficult to say at an early age but being delayed, not making eye contact, not showing emotions, lack of socializing, etc. These can be signs. I've also noticed as he's getting older he's showing some signs similar to adhd, but it seems to be the autism. He's high functioning autistic. |
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