hello mystique welcome to jsh... im sure u will find a few
friends here to talk to...

welcome Mystique, this is the right place for sure. I hope that surgery
goes well for your child. I have a neice that is going to have surgery
again next year to replace a heart value. Anytime you
need to talk with someone come on here, it is always open with someone
to listen. Hug

Hi Mystique, welcome. We're all just one big dysfunctional family here,
jump right in wherever you please. My prayers for your baby, keep us
updated about her.

My now three year old (adopted) son was born with down syndrome, iris
and retina coloboma in his right eye... (this means that when you look
at something there might be a part of the picture missing like a black
hole in everything you look at) and he has two holes in his heart ASD
(atrial septal defect) and a PDA (this should have closed when he was
born). When we first adopted him we were told those holes would close up
on their own, however that just isn't the case. I'm suppose to meet with
a ped. cardilogist and surgeon next week.

i used to work with disabled chidren[ alot happened to have down
syndrome]and it was fun but definately work so i empathize welcome and
just because someone said [even a dr.] that the holes would close
doesn't make it a garauntee ,had a bud in elementary school with just
that and there was really very little he couldn't do but he knew when
not to do some thing's

wow hope they can fix the problems....

Welcome Mystique, my prayers are with you, Prayers can do wonderous
things, they have for me!!!

Welcome to JSH!

I'll keep you and your little one in my prayers... In the mean time,
have fun in the playground!

I try to remind myself of all the babies in the NICU... premies who come
out strong. I guess I need to admit I'm scared. During the last
appointment I came out and began crying with my son in the back seat and
he hollered out "Mommy..... mommy..." I looked back to him asking him
what... and he just said "I'm sorry Mommy... I'm sorry." Gosh who is
going through this heart surgery... me or him? I look at my little guy
and think how small his veins are, knowing we have the choice of
catheterization or open heart surgery. I think they are leaning towards
catheterization right now, but I will know more next week.

Welcome Mystique. You are among friends here.

I'm sending a blanket of light to surround you and your little one.

Little folks are stronger than we give them credit for, I have a
greatniece and nephew (twins) that were born last month premature, Both
barley weighed over a pound and the boy has some heart problems but both
are doing well, as I said prayer can be a wonderous thing

Welcome Mystique, you've come to the right place.
Folks here are great people. We're all pullin' for you and your son. My
prayers are sent your way

My wind, a poem dedicated to my adopted son with Down syndrome.


MY WIND

Strands blowing in the wind,
As your eyes grace the blue sky,
Short, stubby fingers pointed up,
A question in your eye.

Your words may be limited,
Your ideas sail fast,
It’s fun trying to keep up,
My little breeze to the past.

Big mansions, funny faces,
On gales as clouds roll by,
Frolicking leaves, green waves of grass,
Sunlight beaming from your eye.

Blowing baby lotioned kisses,
Pursed lips so heaven sent,
Warmth coming from your laughter,
Daffodils all loved, now bent.

Brown butterflies cast down,
Thwarted in a whirling gust,
Stumbling you fall,
A merriment covered all in dust.

As the day nears its end,
You take my breath away,
By all the little things you do,
Down syndrome doesn’t come in play.






Angel drawing inner strength,
A strong wind cast from cloud nine,
Bursting, blowing, teaching all,
God's wind pushing from behind.



How gently you do play,
Gliding...teasing as you go,
Surpassing expectations,
Zooming daily to and fro.

Hi Mystique..Welcome