Topic: Fibromyalgia
no photo
Thu 10/09/08 07:43 AM



But....there are trigger points that the doctors press into.
They hurt a lot when that person has Fibromyalgia. It doesn't bother people that don't have it.


yes, some of the trigger points hurt so bad, it brought tears to my eyes....and I found myself cringing when he'd start to go to another pressure point.


I've heard that Fibromyalgia pts. have awful pain when the trigger points are pressed into by the doctor.

Have you seen a pain management doctor yet?


Not yet, at this point, I'm doing OK with it, in other words, it's not overwhelming me. My physician here is so great to work with me and as long as I keep everything manageable myself, then I'll wait.

dreamsforuandme's photo
Fri 10/10/08 10:59 PM




But....there are trigger points that the doctors press into.
They hurt a lot when that person has Fibromyalgia. It doesn't bother people that don't have it.


yes, some of the trigger points hurt so bad, it brought tears to my eyes....and I found myself cringing when he'd start to go to another pressure point.


I've heard that Fibromyalgia pts. have awful pain when the trigger points are pressed into by the doctor.

Cathy, like others have written, exercise does work wonders and I agree that walking and swimming are the best. My doc has put me on tramadol which takes the edge off. I don't get alot of sleep which makes it much worse and still trying to get the sleep aspect worked out. Good luck and you are fortunate to have a doc who listens to you. Here in Oklahoma there is a new study which I am going to be involved in to try a new medication. You might check your area to see if there might be one there.

Have you seen a pain management doctor yet?


Not yet, at this point, I'm doing OK with it, in other words, it's not overwhelming me. My physician here is so great to work with me and as long as I keep everything manageable myself, then I'll wait.

dreamsforuandme's photo
Fri 10/10/08 11:00 PM
frustrated Not sure how I did that but posted in your post...frustrated

no photo
Sat 10/11/08 02:57 AM

frustrated Not sure how I did that but posted in your post...frustrated


I've done that too! But I found what you wrote. Yes, there's studies being done in NC. But, I live in the mountains, the nearest city in which those studies were being conducted was like 1 1/2 hrs away, because I have to work it made it impossible to be a part of that.

It's the fatique that gets to me more then the pain. I've always been a "go getter" and it frustrates me to no end that this is interferring with that. And sleep...when I have told people that I can't sleep, that when I wake up, I'm AWAKE, they'll say something like why don't you lay there for awhile and go back to sleep. I don't know about others but there is no "groggy wakeup time". I am either asleep or wide awake! I've tried a few sleeping aids, they'll work for maybe two weeks. What I have started doing, tho', is when I feel sleepy, no matter what time of day or night, I go to bed instead of trying to fight it. While I'm at work I can't do that, but if I come home at 6 and by 6:30 I'm sleepy, I go to bed.

The SS administration has also now accepted this as a condition for which people can qualify. I haven't tried to file and don't intend to while I can still manage. I guess in my mind I feel that if I do that, I'm giving up!

The Fibromyalgia Network publishes periodicals and has a web site. I've found those to be of help to more understand all the symptoms and what seems to benefit.

I am very lucky that I have a physician who has done research and works with me.

I wish you luck with the studies, you'll be helping a lot of people as well as yourself if they find something to help. I will also keep you in my thoughts!

flowerforyou

dreamsforuandme's photo
Sat 10/11/08 09:09 AM


frustrated Not sure how I did that but posted in your post...frustrated


I've done that too! But I found what you wrote. Yes, there's studies being done in NC. But, I live in the mountains, the nearest city in which those studies were being conducted was like 1 1/2 hrs away, because I have to work it made it impossible to be a part of that.

It's the fatique that gets to me more then the pain. I've always been a "go getter" and it frustrates me to no end that this is interferring with that. And sleep...when I have told people that I can't sleep, that when I wake up, I'm AWAKE, they'll say something like why don't you lay there for awhile and go back to sleep. I don't know about others but there is no "groggy wakeup time". I am either asleep or wide awake! I've tried a few sleeping aids, they'll work for maybe two weeks. What I have started doing, tho', is when I feel sleepy, no matter what time of day or night, I go to bed instead of trying to fight it. While I'm at work I can't do that, but if I come home at 6 and by 6:30 I'm sleepy, I go to bed.

The SS administration has also now accepted this as a condition for which people can qualify. I haven't tried to file and don't intend to while I can still manage. I guess in my mind I feel that if I do that, I'm giving up!

The Fibromyalgia Network publishes periodicals and has a web site. I've found those to be of help to more understand all the symptoms and what seems to benefit.

I am very lucky that I have a physician who has done research and works with me.

I wish you luck with the studies, you'll be helping a lot of people as well as yourself if they find something to help. I will also keep you in my thoughts!

flowerforyou


I am like you with the sleep thing, I lost a good friend because it literally made her mad that sometimes I just was not up to going out and I look back now at that friendship and see that it was always more about her needs than anyone else's so am the better person now that it has ended.

Thanks for the info about the SS Administration, although I would only go that direction if I could no longer do as I am doing, the best I can each day to deal with the pain, sleep loss, overall fatigue.

Kinda excited about the study and hopeful that something will be found.

I tried ambien for a very short time to sleep but sure didn't like the groggy way I felt when I woke up, enough of that so just try to physically wear myself out so that there is no alternative but to sleep.

I'll certainly post it here if anything good comes from the study and look forward to hearing more that everyone else learns. I was diagnosed with this about 15 years ago at Duke University after undergoing so many tests and procedures to be certain it couldn't be anything else. I do understand how some can think it to be the catchall because initially it truly was but not so much now with research ongoing.

No1sLove's photo
Sat 10/11/08 10:32 AM
Fibromyalgia is any widespread, chronic, inflammatory response in the body that can't be positively diagnosed as a "known" condition.

The sure fire way to tell if this is your condition, and not a misdiagnosis for a treatable issue that's being overlooked, is to abstain from sugars and artificial sweeteners and cut back on carbs...especially from white flours, corn and potatoes for two weeks and get muscle stimulation/building exercises every day...no cheating! If the condition eases after two weeks, then the diagnosis, though vague, is accurate.

Some peoples muscles become intolerant to sugars, and instead of absorbing them as they should, they break them down which causes the trigger points to become hard and sensitive. This is why the trigger point test is commonly used to diagnose..which is not that conclusive.

Dietary changes and building new muscle to better absorb the bodies sugars is the best and most natural way to control this condition...if that's what it is.

mendy2's photo
Mon 10/27/08 07:50 PM
Hi I was diagnosed with fibromyalgia about 6 years ago. The best thing for me is I walk about 2 miles aday if I can. If I Travel alot it make it worst. So when I know Iv over done it I just reat the next day. It made it worst when my husband paased away and I moved in with my mom.Iam helping her now and its alot of stress. But I moved in the counrty so I walk alot. I hope this some how helps you too. charlote

Ruth34611's photo
Mon 10/27/08 07:51 PM

Ps. Stay away from Diet anything!!! The artificial sweetners increase pain!!!!


Really? I have Lupus and I wonder if that is also true for my pain.

Winx's photo
Mon 10/27/08 09:23 PM


Ps. Stay away from Diet anything!!! The artificial sweetners increase pain!!!!


Really? I have Lupus and I wonder if that is also true for my pain.


Sorry to here that, Ruth.flowerforyou

Rapunzel's photo
Mon 10/27/08 09:23 PM

Fibromyalgia is any widespread, chronic, inflammatory response in the body that can't be positively diagnosed as a "known" condition.

The sure fire way to tell if this is your condition, and not a misdiagnosis for a treatable issue that's being overlooked, is to abstain from sugars and artificial sweeteners and cut back on carbs...especially from white flours, corn and potatoes for two weeks and get muscle stimulation/building exercises every day...no cheating! If the condition eases after two weeks, then the diagnosis, though vague, is accurate.

Some peoples muscles become intolerant to sugars, and instead of absorbing them as they should, they break them down which causes the trigger points to become hard and sensitive. This is why the trigger point test is commonly used to diagnose..which is not that conclusive.

Dietary changes and building new muscle to better absorb the bodies sugars is the best and most natural way to control this condition...if that's what it is.





thank you ...drinker flowerforyou drinker


Winx's photo
Mon 10/27/08 09:24 PM
It is real. I studied it in school. There are tests for diagnoses. There are ways to make it feel better.

Ruth34611's photo
Mon 10/27/08 09:27 PM



Ps. Stay away from Diet anything!!! The artificial sweetners increase pain!!!!


Really? I have Lupus and I wonder if that is also true for my pain.


Sorry to here that, Ruth.flowerforyou


I do much better than most. flowerforyou

Rapunzel's photo
Mon 10/27/08 09:28 PM
i have been diagnosed with it , flowerforyou

as well as a myriad of other things...happy




It sounded like a cop out to me...huh

when they are just speculating frown


i guess i will look into the things suggested here ...flowerforyou


to alleviate pain drinker


thank you very much drinker :heart: drinker


Winx's photo
Mon 10/27/08 09:28 PM




Ps. Stay away from Diet anything!!! The artificial sweetners increase pain!!!!


Really? I have Lupus and I wonder if that is also true for my pain.


Sorry to here that, Ruth.flowerforyou


I do much better than most. flowerforyou


And be a mom too.flowerforyou flowerforyou

Winx's photo
Mon 10/27/08 09:29 PM
Edited by Winx on Mon 10/27/08 09:30 PM

i have been diagnosed with it , flowerforyou

as well as a myriad of other things...happy




It sounded like a cop out to me...huh

when they are just speculating frown


i guess i will look into the things suggested here ...flowerforyou


to alleviate pain drinker


thank you very much drinker :heart: drinker




You do exercise. My Aunt has it and swears that walking helps her.

It's good to make sure other things have been ruled out before the final diagnosis.flowerforyou

Ruth34611's photo
Mon 10/27/08 09:29 PM

How many years did they have to go to school,


to come up wth that brilliant deduction ???





I truly hope you never come down with one of these "invisible" illnesses, as I like to call them. It is people like you and remarks like that that make autoimmune diseases 10 times harder than they have to be. Your post is insensitive, mean and ignorant.

markecephus's photo
Mon 10/27/08 09:45 PM
Please keep this discussion on a civil level folks.

Thank you,

Mark

no photo
Tue 10/28/08 01:19 AM
Edited by OneMoreTimeAround on Tue 10/28/08 01:27 AM



I truly hope you never come down with one of these "invisible" illnesses, as I like to call them. It is people like you and remarks like that that make autoimmune diseases 10 times harder than they have to be. Your post is insensitive, mean and ignorant.


THANK YOU RUTH...and to the others who take this serious and NOT with the attitude of the other poster. That is one of the reasons I posted and I hesitated for a long time in doing so. Anyone who suffers almost 24/7...I don't care what kind of name they stuck to it.

no photo
Tue 10/28/08 01:50 AM
I started this post in the hopes that it would be a place where people could share information that would help and for those who might know someone else and it would help to educate.

I, ask, please...to anyone else who desires to post here, if what you have to say won't help, then please refrain from posting at all! (yes, I know about freedom of speech but this isn't about wars, religion, etc.)

no photo
Tue 10/28/08 02:21 AM

I started this post in the hopes that it would be a place where people could share information that would help and for those who might know someone else and it would help to educate.

I, ask, please...to anyone else who desires to post here, if what you have to say won't help, then please refrain from posting at all! (yes, I know about freedom of speech but this isn't about wars, religion, etc.)


AGAIN!