hi my names sean and i have epliplsy. the seizers i have are beond scary, i see things and hear things every time it hapens
im no doing this so people ca ( feel sorry for me) im saying this to to tell you whats it like and if anyone you have thises things or worse, dont hesitate to talk bout it. if you want to talk to me about it one and one mail me. it would be niceto talk to someone who has it

I do not have seizures...

I would like to welcome you to JSH!
Lots of wonderful people here to get to know.
Have fun!

I don't have seizures, but my future mom-in law does. Hers are mini strokes that happen at random points of the day or night for no reason what-so-ever. Scary. They say one good one is all it's gonna take to kill her. She is a great and wonderful person... and really, it hurts to know that she has to live with this condition.

Hello,in 1991 at the age of 31,I had a stroke,I was a truck driver and everything was going great for than wham!!
about a week later I had a seizure,then another,then another.
I want you to know it's the worst thing I've been thruogh,it feels as if I'm being electrocuted,one time I had seizure that when I came to,both of my hips were dislocated and my left shouder was dislocated also,at the tme I was single,I married soon after,but I guess it's too much for her to handle,she divorced me last year My last seizure was a week ago tonight but I just keep my head-up,have a sence of humor and as for now I am no longer a baptist,I'm now a Quaker but I was amazied at how people treet me after they find out,so I keep it secret from everybody,employers,church,and even friends
Thanks so very much,
funnydude

My daughter has seizures. I know they are scary. I'm sorry you experience them, but a lot of people do; so know you are not alone. It doesn't define you, it is just one facet. I get quite frustrated when someone overreacts to the knowledge I've shared that she has seizures.
Welcome to JSH!

Welcome 2 JSH

thank you for the insight sean, and funnydude. i think it can happen to anyone at any time, and it really changes your life, my shirt tail son had petite mauls and two grand maul seizures growing up, he's got asbergers nos, and it can be terrifying. especially when it's a kid you love, thanks

its not good to keep it a secert, as issue may come about and no one would know how to handle it.. its best to open it up and let everyone know about it...

they can be controlled with medications. i have a friend who has epilepsy but functions normally with his meds. he even has his drivers license.

Epilepsy runs in my family, my sister, brother, at least one cousin, 2 uncles and my grandmother that I know about. And my foster daughter had them as well. I had one once, an allergic reaction to a painkiller. Yup, they are definitely scary but they define you only if you let it.

Hope you get to feeling better and meet more people who are supportive because we are out here. I have seen some folks do pretty well with good medical intervention and supportive friends. National Head Injury Foundation is a good place to start. You have to make up your own mind about who you want to tell. Some people are great about it others are a real dissappointment even to real drags. Probably not a bad idea to at least wear a medical ident then at least the cops will know you need help rather than write you off as drunk or drug fiend. Having pain and memories after would make me try to see if I could have someone around to protect me. Sounds like maybe someone is hurting you trying to restrain you during your seizures which is only going to complicate things. Seen unusual things trigger seizures try to keep a log and maybe you can avoid yours. Stress seems to be a biggy. Sorry you got dealt this card in life but then nobody gets all aces very often so hang in ok? Hugs.

Thanks for the input,I've on meds for 17 years,they help alot but not completely all the time and I can function normally,poeple I've known for a long time can't tell that I'm sick I've learned to hide it very well

To Kaseyfsu,
I'm glad your friend gets control. There are some who have uncontollable seizures, despite medicines..some even from other countries, due to FDA and AMA strict regulations. Medicines take a long time to get approved, in the U.S. It's pretty heatbreaking when that happens and that's my daughter's case.

Soooo many neurologists, ketogenic diet, some very invasive surgery. Now it just feels like it's just a small part of her. I assumed that in the begnning, too. Why the heck could she get not control??? It is not as common as obtaining control, fortunately, for most! It's more common with a mixed seizure disorder. As always, with most parents anyway, I'd like to trade places with her to allow her not to have to deal with them. She's my last, so I can dote on her. For those who do have seizures - hang in there. I keep waiting for a new batch of medicines to come out, or maybe adult stem cells. I surely thought at this age she'd have grown out of them. They are not as frequent, but you never really get used to them.