Community > Well Wishes

Topic: Please put Kody in your prayers....
Seakolony Joined Fri 11/07/08 Posts: 11968	Sat 01/07/12 05:12 PM
What a beautiful child, and I will keep him in my thoughts and prayers. Out of curiosity is he on any sort of anti-seizure medications? I'm on both Keppra and Dilantin, I'm not sure what I'd do without them. He is on Topomax, Klonopin, and Risperdal......Dilantin didnt work for him at all, one of the first they tried. I haven't tried Keppra. I was really worried about the depression and suicidal thoughts side affects with Keppra. My son is very susceptible to the side affects of many of the medications. The risperdal helps with the aggression from the Aspergers. Risperdol is one I haven't tried. I'm on ativan as well for emergencies. I have heard a few bad things about Keppra, but my neurologist said it was used best in conjunction with other ant-seizure medications. I hope and pray that they get everything figured out. Risperdal is for Aspergers and Autism, he has an adverse reaction to Ativan it makes him angry

iam4u Joined Fri 10/13/06 Posts: 30096	Sat 01/07/12 05:13 PM
My son Kody has a partial complex seizure disorder intractable and on the autism scale.........in the last month he has been having seizures more frequently again....please put him in your prayers....Thank you Kody will be in my Prayers and may God keep you both safe and well. Seizures are very scaring to be having in your child to see and feel. I wish you both a cure to stop them from him going through. Much love and my Prayers.

Seakolony Joined Fri 11/07/08 Posts: 11968	Sat 01/07/12 05:15 PM
My son Kody has a partial complex seizure disorder intractable and on the autism scale.........in the last month he has been having seizures more frequently again....please put him in your prayers....Thank you Kody will be in my Prayers and may God keep you both safe and well. Seizures are very scaring to be having in your child to see and feel. I wish you both a cure to stop them from him going through. Much love and my Prayers. Thank you......T.

VintagenNerdy Joined Sat 12/31/11 Posts: 1231	Sat 01/07/12 05:17 PM
What a beautiful child, and I will keep him in my thoughts and prayers. Out of curiosity is he on any sort of anti-seizure medications? I'm on both Keppra and Dilantin, I'm not sure what I'd do without them. He is on Topomax, Klonopin, and Risperdal......Dilantin didnt work for him at all, one of the first they tried. I haven't tried Keppra. I was really worried about the depression and suicidal thoughts side affects with Keppra. My son is very susceptible to the side affects of many of the medications. The risperdal helps with the aggression from the Aspergers. Risperdol is one I haven't tried. I'm on ativan as well for emergencies. I have heard a few bad things about Keppra, but my neurologist said it was used best in conjunction with other ant-seizure medications. I hope and pray that they get everything figured out. Risperdal is for Aspergers and Autism, he has an adverse reaction to Ativan it makes him angry Which would explain why I haven't heard/tried it. Aw that's awful. I'm that way with xanax. It hops me up instead of calming me down.

Seakolony Joined Fri 11/07/08 Posts: 11968	Sat 01/07/12 05:26 PM
What a beautiful child, and I will keep him in my thoughts and prayers. Out of curiosity is he on any sort of anti-seizure medications? I'm on both Keppra and Dilantin, I'm not sure what I'd do without them. He is on Topomax, Klonopin, and Risperdal......Dilantin didnt work for him at all, one of the first they tried. I haven't tried Keppra. I was really worried about the depression and suicidal thoughts side affects with Keppra. My son is very susceptible to the side affects of many of the medications. The risperdal helps with the aggression from the Aspergers. Risperdol is one I haven't tried. I'm on ativan as well for emergencies. I have heard a few bad things about Keppra, but my neurologist said it was used best in conjunction with other ant-seizure medications. I hope and pray that they get everything figured out. Risperdal is for Aspergers and Autism, he has an adverse reaction to Ativan it makes him angry Which would explain why I haven't heard/tried it. Aw that's awful. I'm that way with xanax. It hops me up instead of calming me down. Yeah, I really watch his meds closely. Each person reacts differently to different medications.

luv2roknroll Joined Sun 07/06/08 Posts: 30367	Sat 01/07/12 06:18 PM
Our Father, who art in Heaven, hallowed be Thy Name. Thy Kingdom come, Thy Will be done, On Earth, As it is in Heaven. Give us this day our daily bread, and forgive us our trespasses, as we forgive those who trespass against us. And lead us not into temptation, but deliver us from evil. Amen. Many positive thoughts, prayers, and love, being sent to you.

Seakolony Joined Fri 11/07/08 Posts: 11968	Sat 01/07/12 06:21 PM
Our Father, who art in Heaven, hallowed be Thy Name. Thy Kingdom come, Thy Will be done, On Earth, As it is in Heaven. Give us this day our daily bread, and forgive us our trespasses, as we forgive those who trespass against us. And lead us not into temptation, but deliver us from evil. Amen. Many positive thoughts, prayers, and love, being sent to you. Luv ya, R. thanks....