My daughter was born 3 months early and is now over a year old in real time. She has a few medical problems. the most current and most concerning is she doesnt feel pain. she reacts to being startled, poked and things like that but not pain. she is crawling and moves fast shes had her hand stepped on several times and doesnt react to it. her brother who is almost 3 and 32 pounds has step on her leg and yet again no reaction. the most current is playing in her crib she got her arm stuck at an odd angle than didnt bother her just the fact she couldnt get her arm out. ive mentioned it to her dr, omt therapist, and anyone else i can think of, i get the thats odd or i wonder how much pain she can feel. but everyones pertty much dismissive. she is going in in 3 weeks for an abr test which is making sure the nerves connecting the brain stem and ear are working correctly. so she has some nerve issues. guess my question is how concerned should i be? i know if she cant feel pain she will hurt sheself badly eventually. should i keep pushing this issue with her dr ?


need advice plzzzz

Here is some basic information on the very condition you describe!

http://en.wikipedia.org/wiki/Congenital_insensitivity_to_pain

It seems your child may have just gotten a bad draw in the cards of genetics. The thing you need to do is teach your child to at least look at stimuli like anything that can be perceived as touch to make sure they have not been injured. I don't think there is any possible treatment with CURRENT medical science.

Now there is ONE very strange possibility. It might be possible that something foreign like metallic poisoning can cause similar effects to Congenital Insensitivity to Pain. Your child may be very young but sometimes the vector can be traced to the formula the child might be using or even yourself. If you eat a lot of fish, and I mean you are on some diet kick not knowing the warnings about mercury toxicity in fish you could pass mercury poisoning on to your child through your milk. But these are things a doctor who is specialized in Nervous System disorders can assess properly.

You should bring up what I mentioned to you to your doctor! Your doctor should point you to a specialist to address this because yes it can be very serious! I think your doctor is either unfamiliar with the disorder or is not aware of how severe the condition is since they don't get to see the child every day like you do. Don't become dependent on any one opinion.

Also bear in mind that until tests are run your doctor doesn't have a lot to go on. Like I said, it could be genetic and it could be an affect of something. Don't let fear rule you. Have blood assays been done on both you and your child especially looking for metallics and allergens?

I have a son who has a very high tolerence to pain, but he was born with a lot of things wrong and went through a lot of pain in his first 6 months of life, Once he snapped his arm in half and didnt even cry, I just found him sitting outside holding it, trying to keep it up.

None of the doctors worried but I did have to watch him carefully as he didnt tell me when things went wrong.

they often cannot tell you if something is hurting as although they may feel it, it just doesnt register until it is bad that something is wrong..

I learnt that as soon as he did anything abnormal, like cry i would take him to the doctor,

At 6 months old he tossed and turned all night and just made a few little noises, so I rang my doctor who said to take him straight to the doctor, and he had meningitus which they said he would have most likely died if I had waited another hour..

anyway, just watch her, my son is a normal 19 year old now, who still has trouble not knowing he is sick, but besides that he is cool. so be watchful, have it checked out, but I wouldnt worry, without there is a reason to.

thanks
she kinda the same way,its getting her 3 year old brother to realize just cauze she laughs doesnt mean it doesnt actually hurt her.