Hey all :)
Basically all my life I've been anaphylactic to palm oil, coconuts and poultry weird combo but cant be helped I've all ways carried around my epi pen and i tend to go into hospital about 4 to 6 times a month depending on how much time i spend around people(if i dont go to hospital i will die , i have died a few times ).. Its got allot worse as I've got older now i cant be in the same room as anything to do with coconut the other 2 aren't as bad but their still fatal if i come into contact with them, coconuts different be it shampoo,food,body lotion u name it if iam in the same room i have very little time to get outta that room before i start to swell then require a ambulance.
My question is, Know anyone else that also has acute anaphylaxis to coconut would be nice to know ? anyway give me your thoughts :)

It sounds like in some ways you have a difficult life, at least that you have to be very careful. I am deathly to penicillin and can't take codeine either. I know many people with very dangerous allergic reactions, it is never good but you sound like you have a bad time of it! Coconut is in so many products! I wish you all the best and a month (at least) of no trips to the hospital.

haha thanks :) mind if i ask what actuly happens to you when you take penicillin .. i mean i presume its similar your lips swell then tounge then face then body .. then your arms go purple .. then you wake up in a hospital bed ? or is it diffrent from you ?

your Allergic to my shampoo

this mean you can visit my island lol

seriously i have heard of cases like that but never believe ....
but am taking your word for it ...

This about sums it up except I didn't get purple arms, I had my whole body covered in huge welts, but the rest is about it! I have been told by more than one medical professional that given my last reaction that even if I were already in a hospital when given penicillin the chance of my surviving would be almost nothing. This includes of course any derivative of penicillin too. Codeine will land me in the hospital too but so far it isn't as deadly as penicillin, terrible anxiety attacks and a feeling of being totally out of control to the point of suicidal thoughts, hyperventilate.... Not fun!! I didn't discover my codeine allergy until the evening of the day I had major sinus surgery which is also known to cause anxiety attacks, what a terrible night that was, landed in the ER about 3am...

you sound like youve had it ruff :(
but its intresting to know that its not just me that gets those thoughts like helplessness and feelign allmost depresed you dont know what to do with yourself and it doesnt help that ur completly wrecked so tired and it feels like youve been hit by a bus..
iam lucky in some sence iam under the " royal brompton hospital" in london its the best hospital for allergies in the UK.
another question for you :P .. i have to take constant meds . do you ?@ seamac

No I don't take meds, in fact for me the trick is to avoid those two meds at all cost. My nearly fatal penicillin episode was when I was about 30, 24 years ago, as long as I or someone with me can talk I am ok because everyone who knows me knows to tell a Dr. or nurse NO penicillin!!

You have it much worse than I do. I know what to avoid and there are alternatives for both if I should need them. You have to be aware most all of the time from the sounds of it. Just being in a room with a coconut product is dangerous for you!

It is, I think very normal for you to feel helpless etc but I do hope that if this is an ongoing problem for you that you seek professional help. I truly hope that there are other areas of your life that give you joy and then the parts that are just normal everyday days!