Since you took down your smile pic-have some of mine.

thankyou.

You're welcome. You need all the support. Just e-mail me when you're down I'll cheer you up.

i forgot to say before, the doctors have been forcing these oral steroids on me and i kept refusing them, its a good job i did, else my steroid levels would be even higher than they are now, and that causes heart problems due to the overload of steroids, all my syptoms point exactly to this, i just hope to god my heart is ok. im angry and upset at the same time.

well day one starts now, im reducing slightly today, i dont know what to expect, im meant to be going on the tram tommorow alone and going shopping would you go, when you reducing meds and anything can happen?? or do you think i should stay home with someone with me??

thanks.

what do i do about tommorow??

Honey if you dont feel comfortable going out alone, then dont.

Ill be praying for you Deb..

You can only live one day at a time and make the most of it.

i know, im just saying ill be alone and quite far away from home, and im weaning already, put ive been giving some meds today, and the doctor said a lot of people faint using them, so what if that happens tommrow and no one will know ive got cushins, and i could have a crisis, i just wanted to get out, but dont know if its a good idea.

Sorry to hear this Debbie. You are such a sweet person. Sending prayers, hugs and well wishes your way ~~~

thanks missy, i wish you could come with me and we could go for coffeee

thanks, your a angel

I'd go out with you, but there is no transatalantic tunnel yet. Personally I wouldn't go out unless you had someone to go out with.

thats what my mom said, because im weaning off the steroids, i could go into a crisis and thats fatal. plus i guess ill need to buy a i.d tag saying ive got this disease, im just worried if anything happened tommrow, no one would know what to do.

id take you to the pub too

My dad has a bad heart and has an id tag. They wouldn't let him leave the hospital without it.

im going to have get one, but i dont know wear from. ill ask my doctor.

That would be awesome darling!!!

and be dearing and have baileys in the coffee

Hey there - I'm late catching this thread. I am so very sorry to hear about your illness. At least though, it's finally diagnosed and it sounds like you're taking the necessary steps. Please accept my and